Ansplant worked. Over a period of two years my white blood count dropped until it reached the normal range: there was no trace of leukemia. I am a living miracle. But the complications continued – with auto-immune/ graft versus host disease (gvhd) problems, infections, dozens of hospitalizations, cataract surgery, double-knee replacement surgery, an exploratory laparotomy… all this time i have fended for myself in the medical jungle – worked my way through the problems with the help of some tremendous doctors and nurses, family and friends. But things have changed. Last winter i was diagnosed with tongue cancer. I was suddenly plunged into a whole new realm of doctors, treatments, tests, medications. It felt like i had been transferred to the medical equivalent of the tower of babel – everyone spoke a different language than i was used to. I estimate there are a dozen doctors currently involved in my care. My list of medical and emergency contacts, my doctors, their phone numbers and emails, their nurses and office assistants and their emails, four different pharmacies, three different medical supply companies – fills up six pages of notes. So here i am, looking at the phone and my six pages of notes. I am having a medical problem. generic viagra buy viagra for men cheap viagra cheap generic viagra viagra online cheap viagra cheap viagra online buy cheap viagra buy viagra online viagra online It may be severe, and i don’t know who to call. The reconstructive surgery after my tongue surgery did not go well. So i was left with a hole in the newly built bottom of my mouth and another hole in my neck. Now i am having pain in this area of the bottom of my mouth and some bleeding. It could be related to the surgery, or the plastic surgery, it could be an autoimmune/gvhd reaction or a side-effect from my chemotherapy. Or something else. The problem is that no one is coordinating my care. Because my bone marrow transplant doctor doesn’t know about tongue cancer and reconstructive surgery; my chemotherapy doctor doesn’t know about mouth gvhd; the surgeon doesn’t know either… hopefully, this is a minor problem. Because as difficult as this is, when complications set in after my surgery — pneumonia, infections, blood clots —â my family had no idea who to talk to. â  one set of doctors would set out orders. Another set would change or modify the orders. A third set would suggest other changes. There was no one coordinating my care. But towards the end of my hospitalization something changed. A clinical nurse practitioner stepped in and acted as a go-between between my family and the doctors. She took our questions and concerns and she tracked down the doctors to get the answers we needed. Speaking to the different specialists she helped to clarify and coordinate my treatments. â it was a revelation as to how the system could work for a patient like me with complicated prob.
RudyRanch Photography
Capturing moments which captivate for a lifetime!


      

 

 

 


    
  
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